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Caregiver Priorities and Child Health Index of Life with Disabilities (CP CHILD)
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Purpose
Measure of health related quality of life - Children with cerebral palsy 5-18 yrs GMFCS IV-V
Assesment Type
Patient Group
Cerebral Palsy
Age Group
Children (3-12 years) | Adolescents (13-17 years)
ICF domain
Environment & Personal
Area of assessment
Activities of Daily Living | Quality of Life
Key description
Parent/carer questionnaire . 36 items in 6 domains:
Personal care/ADLs Positioning/Mobility,
Communication/Social interaction,
Comfort/Emotions & Behaviour
Health,
Quality of life
Additionally there is a caregiver’s perspective on the Importance of these items to the child’s quality of life.
Cost
Free https://lab.research.sickkids.ca/pscoreprogram/cpchild/
Equipment required
Pen and printed questionnaire
Training required
Guidance and experience recommended with questionnaire
Considerations & references
Reliability / validity
Good reliability >0.7 Concurrent validity with GMFM. Inter rater reliability 0.64.
Sensitive to change pre/post orthopaedic surgery/baclofen pump. Less sensitive to change pre/post therapy
Strengths / weaknesses
Relevant health issues for this population
Guidance needed for accurate completion of questionnaire.
https://pubmed.ncbi.nlm.nih.gov/24856788/ see below
Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy
Time to complete
45-60 mins
Comments
Also available in Chinese, Danish,Dutch,Farsi, French,Hebrew,Korean, Malaysian, Norwegian, Pilosh, Portuguese German , Spanish, Swedish, Turkish
https://lab.research.sickkids.ca/pscoreprogram/cpchild/
If you spot any errors or wish to suggest any amendments to this summary, please contact paediatricmeasures@apcp.org.uk