CP Quality of Life Questionnaire (CP QOL)

To assess the quality of life. Children with cerebral palsy aged 4-12 years and a separate questionnaire for adolescents aged 13-18 years.

Patient Reported Outcome Measure (PROM)

Cerebral Palsy

Children (3-12 years) | Adolescents (13-17 years)

None

Quality of Life

Description
Measures seven areas of a child’s life:
Social wellbeing & acceptance, feelings about functioning, participation & physical health, emotional wellbeing & self-esteem, access to services, pain & impact of disability, family health
Two versions:
primary caregiver/parent report for children aged 4 to 12 years,
a self-report for children aged 9 to 12 years.
26 page downloadable manual
Reliability / validity
Limited data on reliability and validity of this tool as an outcome measure:test–retest reliability ranged from 0.76 to
0.89.
https://dro.deakin.edu.au/eserv/DU:30007087/lo-psychometricproperties-2007.pdf

Strengths / weaknesses
User friendly when completing questionnaire- relevant to their age group
Detailed scoring system

Free

Downloadable and printable https://www.ausacpdm.org.au/research/cpqol/

Experience.

Equipment required
Downloadable and printable https://www.ausacpdm.org.au/research/cpqol/

Cost

Free to download

References/ Links
CPQOL - Cerebral Palsy Quality of Life -Manual

https://www.ausacpdm.org.au/wp-content/uploads/2019/01/CPQOL-Child-manual.pdf

https://onlinelibrary.wiley.com/doi/pdf/10.1017/S0012162207000126.x

Psychometric properties of the quality of life questionnaire for children with CP

Time to complete
15-25 mins
Comments
Available in Arabic, Bahasa Indonesian, Bahasa Malaysian, Dutch, Farsi, French, German, Greek, Hebrew, Italian, Korean, Mandarin, Myanmar, Polish, Portuguese, Serbian, Spanish, Tamil, Thai and Turkish.

Downloadable and printable
https://www.ausacpdm.org.au/research/cpqol/

If you spot any errors or wish to suggest any amendments to this summary, please contact paediatricmeasures@apcp.org.uk