Patient Reported Outcome Measure (PROM)
Back
Disabkids
View Full Measure
Purpose
To assess the Health Related Quality of Life (HRQoL) of children and adolescents with chronic medical conditions from their own as their parents’ or caregivers’ perspectives
Children 8-18y
Assesment Type
Patient Group
Cerebral Palsy | Other | Respiratory
Age Group
Children (3-12 years) | Adolescents (13-17 years)
ICF domain
Environment & Personal
Area of assessment
Quality of Life
Key description
Description
Questionnaire short (12 questions) or long (37 questions) Completed by child or parent or both.
Can be used in tandem with the KIDSCREEN to compare DISABKIDS data with epidemiological reference data
12-item short-forms (DCGM-12), 6-item Smiley versions (for children aged 4-7 years) and 7 condition-specific modules (asthma, arthritis, cerebral palsy, cystic fibrosis, dermatitis, diabetes, and epilepsy) exist
Reliability / validity
https://pubmed.ncbi.nlm.nih.gov/16713521/
Strengths / weaknesses
Not known
Cost
Free - registration is required.
Equipment required
Questionnaire download:
https://eprovide.mapi-trust.org/instruments/disabkids
. Tutorial link on website
Training required
N/A
Considerations & references
Equipment required
Questionnaire download:
https://eprovide.mapi-trust.org/instruments/disabkids
https://pubmed.ncbi.nlm.nih.gov/16713521/
. Tutorial link on website
Cost
Free Registration is required.
References/ Links
Time to complete
10 minutes
Languages
Dutch, French, German, Italian, Polish, Portuguese, Swedish
If you spot any errors or wish to suggest any amendments to this summary, please contact paediatricmeasures@apcp.org.uk