Patient Reported Outcome Measure (PROM)
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Egen Klassification Scale 2
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Purpose
Assessment of functional capacity and predict the need for non-invasive ventilation. Can highlight need for further occupational assessment of activity of daily living and manual handling
For individuals with Duchenne muscular dystrophy or spinal muscular atrophy who are non-ambulant.
Assesment Type
Patient Group
Neuromuscular
Age Group
Children (3-12 years) | Adolescents (13-17 years) | Young Adult (18+ years)
ICF domain
Activity & Participation | Environment & Personal
Area of assessment
Respiratory Function
Key description
Parent/carer/patient questionnaire . Covers 17 everyday functional activities. Ordinal score 0-(independent) -3 (dependent) Score of 21 or more suggests need for non-invasive ventilation
Reliability / validity
Test retest 0.95
https://www.nmd-journal.com/article/S0960-8966(12)00473-7/pdf
Strengths / weaknesses
Can reflect decreasing functional ability
Cost
Free
Equipment required
Printed scale and pen
Training required
Experience
Considerations & references
References/ Links
Scale: https://rcfm.dk/wp-content/uploads/sites/2/2021/01/EK2_engelsk.pdf
Time to complete
Less than 10 minutes
Comments
Also available in Portuguese,Spanish, Turkish
If you spot any errors or wish to suggest any amendments to this summary, please contact paediatricmeasures@apcp.org.uk