Patient Reported Outcome Measure (PROM)
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EuroQol EQ5D-Y
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Purpose
To determine how difficult and how each area is affecting their emotional well being in participation and ADLs. Can be used for assessment, and as an outcome measure.
EQ-5D-Y is designed for self-completion by children and adolescents aged 8-15 years.
For those aged 4-7, a carer can complete.
Assesment Type
Patient Group
Cerebral Palsy | Musculoskeletal | Neurodisability (Other) | Neuromuscular | Other | Respiratory
Age Group
Children (3-12 years) | Adolescents (13-17 years)
ICF domain
Environment & Personal
Area of assessment
Activities of Daily Living | Pain | Quality of Life
Key description
Description
5 statements relating to mobility, activity, pain,and attitude are scored 1-3 (no/some/a lot of problems)
Reliability / validity
Cost
Free
Equipment required
Questionnaire: EQ-5D-Y Self-complete versions are available on paper/ smartphone/tablet or laptop
Training required
None
Considerations & references
References / Links
Strengths / weaknesses
Original questionnaire has been modified to make it more relevant to younger users and simplified/ more user friendly. Ceiling effects exist.Better at detecting severe, rather than moderate impairmentThe EQ-5D-Y shows fair to moderate test–retest reliability, Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2892614/
Cost
Free but registration required
How to obtain EQ-5D
https://euroqol.org/support/how-to-obtain-eq-5d/
User guide: EQ-5D-Y User Guide
https://euroqol.org/wp-content/uploads/2019/10/EQ-5D-Y-User-Guide.pdf
Time to complete
5-10 minutes
Comments
Available in 200 languages
If you spot any errors or wish to suggest any amendments to this summary, please contact paediatricmeasures@apcp.org.uk